The complex of thrombinogen is in short supply B-mode

The complex of thrombinogen is in short supply B-mode hemophilia patient's condition asks for emergency help
Cub reporter staff reporter Miao Fei and Zhang Ran of this newspaper

Recently, the essential medicine thrombinogen complex of B-mode hemophilia patient asks for emergency help. The thrombinogen complex of a plurality of cities of the whole country including Beijing presents shortage, some patients have to stand illness. Yesterday, Bureau of Drugs Supervision of Beijing responded claiming, will coordinate actively nationwide, solve the insufficient in supply state of medicines.

The child very reluctantly parents worry

The patient does not need very dangerous producer of medicine to claim to be doing the best to produce and signing jointly to higher authorities to reflect

It is a B-mode hemophilia patient that 14 -year-old Yang Zhi is prosperous, the children's hospital receives treatment for 6 years in Beijing. On December 6, when he goes to receive treatment, tell that " there are not medicines " in the dispensary .

Yesterday, reporter telephone interview Yang ZhiXin's mother. Mother Yang says, the night before last, the son ached again to cry.

It is reported, Yang ZhiXin is 14 years old this year, made a definite diagnosis of B-mode hemophilia at the age of 8, his uncle is the hemophilia patient too. For cure the disease, their family come Beijing, by go in for from the intersection of Hebei and the intersection of Baoding and native place a big way, like the vegetable stall, live by first market four people of one family.

Nowadays, Yang Zhi prosperous joint swelling pains often. Mother Yang says: "I need to give him a piggyback to go to the hospital when being serious. " On every Tuesday, Yang ZhiXin should go to the children's hospital of Beijing to inject complex of thrombinogen once, four each time, 200 yuan for one. The difficult problem except using medicine, the high expenses are the burden of Yang one too. At the request of hospital, Yang ZhiXin should go to hospital two times every week. Mother Yang says: "Want the medical fee of more than 3000 yuan now, one month, really have no money. "

What face lacking medicine problem includes Li Bolun of Chengde of Hebei like Yang ZhiXin, this year 3 year old, make a definite diagnosis of B-mode hemophilia at the 6 months. The day before yesterday, Li Bolun's mother was bringing child to the children's hospital of Beijing, inject the complex of thrombinogen, is told too that there is not medicine. Mother Li ask relation buy medicine from Tianjin, tell either, the other side claim the medicine in short supply to want, keep some time, maybe by next year. "Many ward mates say that there are not medicines. Without medicines, child's arthritis, I love even more. " Mother Li says.

It is very dangerous that the patient does not use medicines

It is reported, the complex of thrombinogen is that a B-mode hemophilia patient is essential, is the only medicine too. One week recently, three hemophilia rescue centers by fixed position in Beijing do not have stock of complex of thrombinogen.

Beijing the intersection of children's hospital and the intersection of hematology and Wu moisten the intersection of sunshine and director, verify the intersection of thrombinogen and already complex of hospital. "The B-mode hemophilia patient lacks the blood coagulation factor in the body. Seeming that we will have a meal, the B-mode hemophilia patient needs to supplement the blood plasma blood coagulation factor. Leave medicine, most optimistic state whether joint and muscle pain swelling, once bleeding may cause danger. At present, there is not a blood coagulation factor purified at home, can only use the complex of thrombinogen, blood coagulation factor including others inside. "

Director Wu says, there are patients that can only use the blood plasma again, not merely the result is not good that so, and have the risk that the virus infects. If meet emergency, the blood coagulation factor that the blood plasma offers can not far reach the consumption demand, " replace the complex of thrombinogen with the blood plasma and fall back in 100 at least " .

The producer claims to be doing the best to produce

The Chinese blood friend's family (September of 2000, the non-profit-making hemophilia patient that established supported by research institute of blood disease of the Chinese Academy of Medical Sciences organized) The person in charge stores the jade to only tell reporters, there are 31 fixed hemophilia rescue centers in all in the whole country. The day before yesterday, the staff members of the Chinese blood friend's family phoned to inquire in the capacity of patient, the result received is 25 stocks without complex of thrombinogen, the rescue center with medicine lie in the relatively remote western regions such as Xinjiang, Gansu,etc. more. "Guizhou closes 16 blood stations this year, the undersupply of the blood plasma of raw materials should be lacking primary reason of medicine. "

Yesterday, reporters sent a telegram to person's blood product Limited Company of fields lying fallow in rotation of Shanghai producing this kind of medicine with bigger output at home, a staff member tells reporters, the company does not have complex stock of thrombinogen now, doing the best to produce at present, but still difficult to satisfy the demands. For dropping the reason in production, staff members are unwilling to reveal.

Will sign jointly to higher authorities to reflect

A hemophilia patient is enough to let the family fall into the shade: Need to look after a patient at any time, need high treatment expenses. Guan Tao, general secretary of the Chinese blood friend's family, introduces, and is limited by education degree hemophilia patient's health, a lot of ward mates are in unemployed state. The expensive price of the medicine is a heavy burden too to these families.

In the face of the intersection of thrombinogen and the intersection of complex and scarce state at present, Chinese the intersection of blood and house of friend release announcement of " B-mode administration, patient of hemophilia, ask for emergency help and collect signing " on December 6. In two days, they have already collected more than 150 signatures. It collect sufficently to signature last related departments to reflect.

Guan Tao says: "Insist on the ten year one wish,we through letters and visits from the masses, appeal for help, reflect whether to a lot of routes such as deputy to the National People's Congress,etc., make hemophilia classified as the special number of the clinic in a lot of places, can submit an expense account some more. The B-mode hemophilia patient's administration is difficult now, we will never give up any brother. "

Medicines are in short supply

Or because blood source question

The official side responds

The in short supply reason as to medicine, the relevant persons in charge of Bureau of Drugs Supervision of Beijing say, it may be the phenomenon that the question of the blood source causes nationwide medicines in short.

This is responsible for being called, there are not the manufacturing enterprises of this medicines in Beijing, at present, municipal Bureau of Drugs Supervision is carrying on on this question and coordinating actively too.

B-mode hemophilia of the noun

Also called factor deficiency disease or blood plasma blood coagulation and living enzyme composition deficiency disease, the factor code gene mutation of blood coagulation causes the factor function defect of this blood coagulation to cause a disease, present recessive heredity of X chain, the morbidity is about 1/30000 of the living baby of men. A type is about 5.4 with the B-mode morbidity proportion: 1.

Chinese the intersection of blood and the intersection of house and person in charge of friend store jade, introduce only, the intersection of hemophilia and patient of China probably in 60,000 to 70,000 people. Among them, B-mode hemophilia accounts for 1/3. Hemophilia is a hereditary blood disease, B-mode hemophilia is rarer. "A lot of people to the scarce understanding of B-mode hemophilia, even does not know that there is this kind of disease. (B-mode hemophilia) Care and help that the patient receive are fewer. "


The complex of thrombinogen is in short supply B-mode hemophilia patient's condition asks for emergency help