The girl eight years old suffers from rarely "

The girl eight years old suffers from rarely " The petrochemical industry disease " Father promises to never give up
Before Lu TianYing is ill, it is a girl liking dancing. This edition pool: New Bulletin reporter Liao YingYi This edition texts and pictures: New Bulletin reporter Zhou Wen Probational reporter Yin Hang Make warm for the 166th The daughter 8 years old suffers from " The petrochemical industry disease " ,The intersection of father and court Lu promise, give up from Dongguan Lu, already driven to the last ditch now by first of TingFu never while being rich, 8 -year-old the intersection of daughter and Lu tip suffer from call by first kind day " Going on ossified myositis " Strange disease. It is reported, patient of this kind of disease does not exceed 600 in the whole world, but in China, are only less than 10. Furthermore let Lu TingFu feel a heartrending one is, on the medical circle of our country at present, no hospital specially treats to this kind of disease. The condition turns and develops rapidly in January of 2011 after the first operation, the 8 -year-old Lu Tian's tip thinks one's own left foot pains, one week later, unexpectedly is longer than a lump as large as half an egg on the left foot. Lu court rich one expect half the intersection of egg and large lump these at all, the intersection of daughter and beginning of misfortune. "Thought at the very beginning it was cartilage tumour, later on the hospital checked too talked about cartilage tumour. " TingFu Lu tell New Bulletin reporter, after the hospital will make a definite diagnosis of, Lu tip make surgery by the People's Hospital by city in Dongguan on January 25 day. Tip resumes very well day such as Lu behind the operation, do not turn and develop rapidly until situation in April. "In mid-April, begin the bag on her back, a large stretch of film, later on the backbone begins the bag too, very terrible. " Lu TingFu says. Because of the limitations of local medical condition, one of Lu TingFu comes to Guangzhou, hope to cure the daughter's disease here. According to Lu TingFu, they nearly go over Guangzhou large famous hospital, have one can check, appear daughter what disease does it get really accurately. " petrochemical industry disease " Have one cure into court Lu, tell New Bulletin reporter while being rich: "In June, the change of daughter's condition is quite big, her whole back is swollen, and the muscles inside become hard slowly, it seems that there is phenomenon of ossifying. " In August of this year, in Zhongshan University affiliated hospital, Lu TianYing's disease was made a definite diagnosis of " going on ossified myositis " at last ,This means, if can not get the effective treatment, the muscles of Lu TianYing's whole body will ossify, turn into completely " Stone people " ! School tell Lu whether institute this treat the disease never before this, have intact healing solution still. Unreconciled to the daughter's life on such quilt " Ossify " ,Lu TingFu begins to look into the materials, domestic doctor concerned of the connection on the net, but come to nothing. "Some doctor said global patients of this kind of disease are only 600, but China is less than 10, no treatment succeed at present, you say mine what shall daughter do? " Lu TingFu says at the other end of the telephone. It is still unable to estimate to treat the expenses for last week on later stage, Lu TingFu was taking daughter to Shanghai to seek medical advice, but still disappointed and returning. "The doctor over there is at a loss what to do too, and the daughter can't carry on the operation any more, can only slow the intensity of muscles ' ossify ' down by taking medicine, " TingFu Lu tell New Bulletin reporter still, according to the introduction of doctor, daughter gene mutation in the disease, the concrete reason is not clear, but according to past case, the patient of this kind of disease can only generally live to more than 30 years old. Lu TingFu says to reporters, U.S.A. specially puts out the laser treatment for this kind of disease now, hear very effectively, want to have a try. However, depend on Lu court of a rich incomes working as a temporary labourer in Dongguan, it is totally Arabian Nights to go to U.S.A. to cure the disease, and does not talk about the hospitalization cost, only the tickets to U.S.A. of whole family are all unable to bear. It is reported, in order to cure the disease for Lu TianYing, one of Lu TingFu has already used up few deposit, and to the intersection of daughter and the disease, court Lu have bottom at all in the heart while being rich, he know anaphase treatment how much does it can cost on earth even. "Even if hope more slimly, I do not want not to give up either either, hope the miracle will present one day. " Lu court of rich tone is said firmly. Getting ossified myositis of going on etc. fibrous development bad also, the whole world only finds 600-700 so far, this kind of patient will and influences the activity of the arm because of the shoulder joint, vertebra calcification out of shape, can only lie in bed for a long time finally. Most afraid of knocking against, once health presents the swollen bag, will ossify soon. The condition is developed, the patient will become and look like " stone " The same person. Finally, the thoracic cage expands the difficulty while breathing, and to breathing depletedly.
The girl eight years old suffers from rarely " The petrochemical industry disease " Father promises to never give up